The data is available to any applicant. However, a previous study evaluated the functional capability using instrumental activities of daily living (IADL) scale and found that more independent PD patients were more likely to accept their disease (28). Before discharge, the trained investigators explained the research purpose, asked questions item by item, and recorded the objective answers. the best experience, we recommend you use a more up to date browser (or turn off compatibility mode in Submission Experiences Lancet Neurol. Regarding income, 104 PD patients (31%) were below 3,000 yuan per month (about $470), while 2,210 yuan was the median disposable income for Chinese residents per month in 2019. The PDQ-8, developed by (24), is a specialized scale for evaluating the quality of life of PD patients (25). At last, a total of 360 PD in-patients were chosen by convenience sampling from November 2018 to October 2020. Alarmingly, our PD patients showed a lack of understanding of the disease, and the mean score of the disease understanding was 3.83 (Table 1). (Courtesy ofClarivate Analytics), TheEigenfactor Scorecalculation is based on the number of times articles from the journal published in the past five years have been cited in the JCR year, but it also considers which journals have contributed these citations so that highly cited journals will influence the network more than lesser cited journals. The disease characteristics were shown in Table 1. Ou R, Yang J, Cao B, Wei Q, Chen K, Chen X, et al.. We recommend that greater attention be paid to newly-diagnosed PD patients to facilitate early referral for further therapeutic interventions. Multivariate logistic regression with backward selection was performed to identify factors associated with hospital encounter prior to baseline visit. Patients with atypical and secondary Parkinsonism, patients who refused to be interviewed, patients who had undergone DBS surgery, and patients who were unable to complete the interview were excluded. (2016) 26:4555. There are three types of medical insurance: basic medical insurance, commercial insurance, and self-pay. PD is a progressive neurodegenerative disease, with a long disease duration. Any product that may be evaluated in this article, or claim that may be made by its manufacturer, is not guaranteed or endorsed by the publisher. Zhang TL, Hu AL, Xu HL, Zheng MC, Liang MJ. (2019) 28:44150. Similarly, a study from Poland also found that disease acceptance significantly affected QoL (28). The National Parkinson Centers of Excellence included in the study were: University of Florida, Markham Stouffville Hospital, Struthers Parkinsons Center, Oregon Health & Science University, Northwestern University, Pennsylvania Hospital, Baylor College of Medicine, BIDMC, The University of Kansas Medical Center, Johns Hopkins, The Parkinsons Institute, Medical College of Georgia, University of South Florida, Vanderbilt, Mt. Currently, in China, caring for PD patients mainly depends on family support. Rural Remote Health. The authors declare that the research was conducted in the absence of any commercial or financial relationships that could be construed as a potential conflict of interest. here. Second, physically, a good attitude and logical thinking are helpful to overcome the belittling of self-esteem and obey their current physical conditions. When compared to the rest of the cohort, subjects withdrawn from the study were older, more likely to be female and without a partner or relative as a caregiver, and more likely to be categorized as H&Y stage >2 and have rest tremor, longer disease duration, more comorbidities, a longer TUG, a worse PDQ-39 score and more likely to have a hospital encounter prior to baseline visit (p<0.001). The AOD level among PD patients in China was moderate, and it was influenced by family support, disease severity, and understanding of the disease. Chen K, Yang YJ, Liu FT Li DK, Bu LL, Yang K, et al. The PDQ-39 is a patient-completed quality of life questionnaire with 8 discrete scales in mobility (10 items), activity of daily living (6 items), emotional wellbeing (6 items), stigma (4 items), social support (3 items), cognition (4 items), communication (3 items), and bodily discomfort (3 items). Second, the current study did not measure some factors, including religious beliefs, family dynamics, emotional support, and environmental factors. We speculate that PD patients in the more advanced stage have gradually learned to accept the consequences and adjust to life changes during the chronic course. AOD was assessed by the revised version of the AOD scale (AODS-R), which includes 32 items and four dimensions: enlargement of the scope of values (nine items), subordination of physique (five items), containment of disability effect (nine items), and transformation from comparative values to asset values (nine items). First, access to rehabilitative resources is limited in developing countries, while these resources are common in developed countries, including outpatient rehabilitation, support groups, pain management, and psycho-educational programs. Coelho M, Marti MJ, Sampaio C, Ferreira JJ, Valldeoriola F, Rosa MM, et al. (2001) 33:75863. It was found that stroke patients who reported having religious beliefs had higher AOD scores than those who did not turn to religion (15). (2011) 20:499505. No, Is the Subject Area "Caregivers" applicable to this article? Hely MA, Reid WG, Adena MA, Halliday GM, Morris JG. Requests from other authors for APC waivers and discounts will be considered on a case-by-case basis, and may be granted in cases of financial need. National Parkinsons Foundation, Miami, Florida, United States of America, Roles (2007) 255:7780. A total of 336 PD patients were consecutively recruited from November 2018 to October 2020. 2020YJ0281), grant from West China Nursing Discipline Development Special Fund Project, Sichuan University (Grant No. During hospitalization, approximately 20% of patients experience worsening of parkinsonian symptoms; 44% never return to their pre-hospitalization functional status [6, 7]. Qual Life Res. Resources, Based on variables associated with hospitalization in this study, addressing caregiver burden and needs, simplifying medications, addressing balance impairments, and emphasizing primary and multidisciplinary care for comorbidities are potential routes to explore in future studies aimed at lowering hospitalization rates. About this journal Editor spotlight Chief Editor Dr Cristine Alves da Costa is based at Centre National de la Research Scientifique, France. PLOS ONE promises fair, rigorous peer review, Chin Med J (Engl). The results from these studies indicated that the higher the level of disability acceptance, the better the patients' quality of life. Comorbidities were categorized according to cardiovascular, cancer, respiratory, arthritis, diabetes, other neurological disorders and an other category which includes any chronic disease such as musculoskeletal pain, arthritis, and infectious disease. doi: 10.1080/01616412.2020.1785744, 42. Visit our open research site for further information about Open Access at Springer Natureand APC FAQs. Frontiers | Current Status of Acceptance of Disability and the Competing interests: Dr. Okun serves as a consultant for the National Parkinson Foundation, and has received research grants from NIH, NPF, the Michael J. Conclusion: AOD is a serious problem in PD patients in Southwest China, especially among individuals with insufficient family support and a lack of recognition of the disease. The QoL of PD patients was evaluated using PD Questionnaire 8 (PDQ-8), which contained eight items: (1) mobility; (2) activities of daily living; (3) emotional well-being; (4) stigma; (5) social support; (6) cognitions; (7) communication; and (8) bodily discomfort (1923), ranging from 0 (normal) to 100 (worst disability). Variables collected include demographics (age and sex), number and type of comorbidities (including diabetes, cardiovascular disease, rheumatologic disorders, chronic pulmonary disease and neurologic disorders), living situation (home, nursing home, other) and regular care partner, Certainty of Idiopathic PD Diagnosis, clinical variables (subtype of PD, presence of motor fluctuations, Hoehn and Yahr stage, disease duration), quality of life measurements using the Parkinsons Disease Quality of Life Questionnaire (PDQ-39) [10], ability to stand unaided, number of medications before baseline visit, along with medications and other therapy including levodopa, dopamine agonist, MAO-B inhibitor, COMT inhibitor, amantadine, cognitive enhancers, stimulants, antipsychotics, antidepressants, anticholinergics, DBS, occupational therapy, speech therapy, exercise program, mental health use, and social worker/counseling, timed up and go test (TUG), [11, 12] and the Multidimensional Caregiver Strain Index (MCSI) [13]. Therefore they have higher AOD scores. Focus on Parkinson's Disease | Acceptance Rate, Rejection Rate, Publish Competitiveness, Journal Reputation & Annual Article Number - Academic Accelerator DC, RO, BZ, WS, and XY did the patient evaluation and data collection. Parkinsons Dis. Furthermore, disability acceptance and emotional support from friends partially mediated the relationship between functional disability and QoL in individuals with serious mental illness (42). Mov Disord. The AOD level among PD patients in China was moderate, and it was influenced by family support, disease severity, and understanding of the disease. Dr. Okun has received royalties for publications with Demos, Manson, Amazon, Smashwords, Books4Patients, and Cambridge (movement disorders books). The International Parkinson and Movement Disorder Society (MDS) is pleased to announce that the Movement Disorders Journal impact factor has reached 9.698, according to the 2021 Clarivate Analytics InCites Journal Citation Reports rankings. Survival analysis revealed those with previous hospitalization compare to those without hospitalization had a significantly higher number of hospital encounters during follow-up. As described above, Nature Portfolio has produced the 2-year Median in the table below. developed an AOD scale with 50 items based on the notion of acceptance of loss (10). Parkinson's disease affects approximately 1% of the worldwide population older than 60 years. Current Status of Acceptance of Disability and the Correlation With the Collinearity analysis of variance inflation factors (VIF) were carried out to evaluate the possible multicollinearity effects of the influencing factors. Determination of the longitudinal validity and minimally important difference of the 8-item Parkinson's Disease Questionnaire (PDQ-8), Validation of PDQ-8 as an independent instrument in English and Chinese, Cross-cultural evaluation of the short form 8-item Parkinson's Disease Questionnaire (PDQ-8): results from America, Canada, Japan, Italy and Spain. The mean AOD score was 87.28 8.33, and 55.3% of the PD patients scored at a low AOD level (below the median of 86.00). A meta-analysis found that patients typically lived 6.9 to 14.3 years after a diagnosis of PD, and the Sydney multicenter study found that 36 of 136 patients (26%) diagnosed with PD lived for at least 20 years (29, 30). The care situations of our PD patients may be related to the economic level, and a more advanced and sound care system from family, hospital, and community should be established. 1. Qual Life Res. We speculate that PD patients in the more advanced stage have gradually learned to accept the consequences and adjust to life changes during the chronic course. We found that the mean total ADD score of our PD cohort was 87.28 (SD = 8.33), and 55.3% of patients scored below the median of 86.00. Chen K, Yang YJ, Liu FT Li DK, Bu LL, Yang K, et al.. Chiu SY, Livneh H, Tsao LL, Tsai TY. Health Qual Life Outcomes. Longitudinal studies are required to examine the dynamic change of AOD level over time and explore further causal relationships among the affecting factors. doi: 10.1016/S1474-4422(18)30295-3, PubMed Abstract | CrossRef Full Text | Google Scholar, 2. Received 2021 Oct 7; Accepted 2021 Dec 24. In the present study, a higher level of disease awareness correlated with a higher AOD level in PD patients. Please include what you were doing when this page came up and the Cloudflare Ray ID found at the bottom of this page. Journal of Parkinson's Disease - Volume Pre-press, issue Pre-press Citation: Shahgholi L, De Jesus S, Wu SS, Pei Q, Hassan A, Armstrong MJ, et al. Pearson correlation analysis was used to explore the associations between AOD and other continuous variables. VAT if applicable), and is applied to Research Report, Review, Hypothesis or Short Communication/Case Report articles. All-round support is vital for adaption, and education programs should be developed on the theoretical foundation. The disease characteristics were shown in Table 1. Yes For more information on APCs, please see our Journal Pricing FAQs. When comparing the AOD scores in PD patients with different demographic data and disease-related characteristics, the differences were of no statistical significance among PD patients with different gender, age of onset, disease duration, place of residence, marital status, family history, chronic diseases, exercise habits, job status, educational levels, and type of medical insurance (P > 0.05). Discover a faster, simpler path to publishing in a high-quality journal. It is calculated by multiplying theEigenfactor Scoreby 0.01 and dividing by the number of articles in the journal, normalized as a fraction of all articles in all publications. doi: 10.1046/j.1365-2648.2001.01717.x, 15. Click through the PLOS taxonomy to find articles in your field. Statistical analysis showed that understanding of PD, family support, and UPDRS-II score were major factors affecting AOD level, and patients with low AOD levels were more likely to have poorer quality of life. This analysis builds on the prior work, however, this analysis followed participants over a longer duration of time and also further investigated factors associated with re-hospitalization. Movement Disorder Society Task Force on Rating Scales for Parkinson's Disease. Sinai, Muhammad Ali Parkinson Center, Tel Aviv Sourasky Medical Center and Nijmegen Parkinson Center. We queried the data from the International Multicenter National Parkinson Foundation Quality Improvement study. Our previous study showed that the severity of non-motor symptoms in PD tended to become progressively worse with the course of the disease (4). Dr. Okun has previously received honoraria, but in the past >60 months has received no support from industry. Specifically, for PD participants with no hospital encounter prior to baseline, rates of no hospital encounter were 93%, 65%, 46% and 29% at the end of year 1 to year 4, respectively. Patients with PD who had higher UPDRS-II scores scored higher on AOD, implying that impaired daily activities may play a predominant role affecting AOD level among PD patients. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). For example, reduced mobility and falls are common reasons for emergency hospital admissions in people with PD.[3]. We offer APC waivers and discounts for papers published in our fully open access journals whose corresponding authors are based in the worlds lowest income countries (see our APC waivers and discounts policy for further information). doi: 10.1111/j.2044-8260.1967.tb00530.x, 19. In May 2023, Frontiers adopted a new reporting platform to be Counter 5 compliant, in line with industry standards. Luo N, Tan LC, Zhao Y, Lau PN, Au WL Li SC. (2010) 19:5659. This score was higher than that in stroke patients (Mean = 71.72 and 74.15, respectively) (15, 16), but similar to that in patients with CKD (Mean = 85.02). Moreover, this scale was revised to 32 items by Groomes and Linkowski in 2007. (2016) 360:727. Second, the conduction of AOD evaluation is lacking, and the caregivers do not realize that encouragement on positive self-evaluation is essential. J Adv Nurs. All associations with p-value<0.05 were reported, while those with p<0.0015 were claimed to be statistically significant based on Bonferroni adjustment considering all the variables examined in each regression analysis. This study was approved by the Ethics Committee of West China Hospital of Sichuan University. In this 5-year longitudinal PD cohort with a mean disease duration of approximately 9 years at baseline, 25% had already experienced a hospitalization prior to baseline visit. The QoL of PD patients was evaluated using PD Questionnaire 8 (PDQ-8), which contained eight items: (1) mobility; (2) activities of daily living; (3) emotional well-being; (4) stigma; (5) social support; (6) cognitions; (7) communication; and (8) bodily discomfort (1923), ranging from 0 (normal) to 100 (worst disability). Acceptance of disability and its predictors among stroke patients in Taiwan. No use, distribution or reproduction is permitted which does not comply with these terms. Kaplan-Meier estimates were obtained and Cox regression performed on time to hospital encounter after the baseline visit. (1992) 55:1814. Read the journal: MDS Members Non-Members RSS feeds: Most Recent | Most Cited Download the Journal apps: Background. To specifically assess AOD, Linkowski et al. Furthermore, disability acceptance and emotional support from friends partially mediated the relationship between functional disability and QoL in individuals with serious mental illness (42).
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